Celine Dion makes rare appearance after 'challenging' Stiff Person Syndrome diagnosis - what is the illness?

Celine Dion makes rare appearance after 'challenging' Stiff Person Syndrome diagnosis - what is the illness?

Celine Dion appeared at the GRAMMYs this year

GRAMMYS
Sarra Gray

By Sarra Gray


Published: 05/02/2024

- 12:53

Celine Dion shared that she had the rare neurological condition in December 2022

Celine Dion made a rare public appearance to attend the 66th GRAMMY Awards last night.

The singer has mostly stayed out of the limelight since sharing she was diagnosed with the incurable Stiff Person Syndrome.


The Canadian singer recently gave an update and shared that her condition has been a "challenge".

"This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me," she said in a statement ahead of her documentary I Am: Celine Dion.

Celine Dion GRAMMYS

The singer made a rare appearance last night

GETTY

The documentary will follow the singer as she lives with the condition to help raise awareness.

She added: “As the road to resuming my performing career continues, I have realised how much I have missed it, being able to see my fans.

"During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis.”

What is Stiff Person Syndrome?

Stiff Person Syndrome is a rare disorder where the body attacks itself.

The immune system targets healthy cells which can cause muscle stiffness and spasms of the body.

More research is needed into the progressive, neurological disorder to discover why people develop it.

There is currently no cure, although some treatments can ease symptoms. Celine's sister Claudette recently shared an update on how it is progressing.

She explained Celine has a desire to perform again but doesn't have full control over her muscles, including her vocal cords.

Celine Dion GRAMMYS

Celine Dion shared her diagnosis last year

GETTY

"She's working hard, but she doesn't have control over her muscles," Claudette told 7 Jours.

"What breaks my heart is that she's always been disciplined. She's always worked hard.

"The vocal cords are muscles, and the heart is also a muscle.

"This is what comes to get me. Because it's one out of a million cases, the scientists haven't done that much research because it didn't affect that many people."

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